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Showing posts from May, 2016

My Alien Abduction: #EhlersDanlos Syndrome #EDS @teaminspire @TheEDSociety #‎ZebraStrong2016‬

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Greetings, dear readers!
Yes, I know, it has been quite some time since I have posted a blog. I could provide a litany of reasons why I have essentially vanished from social media, but today - for the last day of Ehlers-Danlos Awareness Month - instead I would like to focus on this debilitating and degenerative joint disorder.  I have had Type III EDS all my life but was not properly diagnosed until 2011.  Then all the puzzle pieces began to fall into place: the sprains, the splints, the surgeries.

My symptoms have continued to worsen to the point where pain and injuries frequently require complete bed rest, all from a condition that others cannot even see. (Effects on social life of invisible disorder.)

The following events occurred in 2007-2008, three years prior to my diagnosis. In 2009, one of the physicians who had treated me sent me this email:
Ms. Saucier -
I have been asked to give a presentation on evaluation of abdominal pain to a large conference of nurse practitioners here i…

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